What Surrogates Should Know About Amniocentesis
Although it is not likely to be a part of your journey, you will be asked in your matching phase how you feel about a procedure called amniocentesis. Many surrogates have never had this procedure previously and are unsure about what it is, or how they should feel about potentially needing one. Let’s take a closer look at what this procedure is, why you may need one, what it looks for, and what you can expect.
An amniocentesis, or ‘amnio’ for short, is an invasive diagnostic test that allows doctors to screen for potential genetic disorders, neuro-tube defects, and chromosomal abnormalities. The test is most often done to screen for Down syndrome, spina bifida, or Trisomy 18 or 21. The test can also identify paternity before birth as well as conditions like a sickle-cell disease, Tay-Sachs, cystic fibrosis, and nearly 100 other conditions.
An amnio is typically ordered after a poor result from non-invasive testing. Non-invasive tests are generally either a neuro translucency (NT) scan or a triple test and are generally conducted between 11 and 13 weeks gestation. If doctors recommend it, an amniocentesis is then typically completed between the 11th -20th week of pregnancy.
The amniocentesis test takes roughly 45 minutes to complete and is often done in a doctor’s office. Using an ultrasound, doctors guide a long needle into a woman’s abdomen, passing through her uterine wall, and into the gestational sac. Ultrasound monitoring keeps the needle from touching the developing baby. Once the needle is in place, doctors extract a small amount of fluid. This fluid contains cells shed by the fetus. Doctors will examine those cells in a laboratory to check for any potential disorders. Results are typically received within a matter of days to a few weeks.
Typically, an amniocentesis does not cause the carrier much pain or discomfort. You may feel a piercing pain when the needle breaks your skin, or again when it penetrates the uterus. Following the procedure, you may experience irritation at the puncture site. Later, you may experience a leaking of fluid or mild cramping. The most extreme potential side effect is a miscarriage. Researchers estimate this happens in 1 out of every 400 instances of amniocentesis.
Despite the risk of miscarriage, some intended parents elect to have this procedure completed to gain a better understanding of the health of their developing baby. Some intended parents may elect to terminate a pregnancy if the child has a severe chromosomal abnormalities or other conditions that would make a live birth or full-term pregnancy unlikely, or would impact the quality of life of a surviving baby.
Due to the weight of these decisions, we ask our surrogates to consider what it would mean to have an amniocentesis well before entering into pregnancy. We also ask you to think about how you would feel if the intended parents elected for a termination following the results of an amniocentesis.
We understand that these are not small things to consider and that you may have questions. If you need to talk with Dr. Kim Bergman, or another member of the Fertility Counseling Services (FCS) team, about this, let your Admissions or Case Specialist know.